In the Headlines!

One month old and on the front page already (thankfully not for anything criminal lol).

Check us out: http://www.zanesvilletimesrecorder.com/article/20120224/NEWS01/202240301/Caring-Callista-Weekend-benefit-help-family-s-medical-costs

We had our first myelo clinic today and it wasn't nearly as scary as I was expecting. Each person had some pretty good things to say about Callie during her examinations. PT gave us some things to do to work on muscle tone in her neck. Physical medicine did not think she would need casting for her club foot and gave us exercises to do to get it loosened up. They said it was already much looser than the last time they saw her while in the NICU. OT gave us some normal baby things to work on like tracking and reaching. Neuro thought her shunt was looking good still (yay for no revision yet!). I told them I thought her head was a bit fuller than usual so we did an MRI and it showed some minimal increases in pressure. They turned her shunt down from 2.0 to 1.5 to let a little more fluid through. Already I can see a difference in her head and her demeanor. They also showed me the scan from today versus the scan from 2/14 and she is actually starting to have her fluid go where it's supposed to go: the fluid that's inside her brain is supposed to be on the outside of her brain between it and the skull. Since her head was so swollen, there was no room for it, so now her brain is "fluffing" back up and her fluid is going (ever so slightly) back to it's rightful place :) Overall, the day was pretty good. We head back up next Friday to recheck the shunt setting to make sure it's right for her. That visit should be MUCH quicker.

The benefit is tomorrow which is pretty exciting but I'm a little nervous at the same time. Dear Lord, please don't let us have a gazillion pounds of spaghetti left over ;)