Catch Up

Apparently work and having a baby really hinder the blogging process. Today was my last day of work and now we're on summer break until August. I'm looking forward to spending a whole lot of time with Callista and doing a mini blog about pinterest projects. I love crafting and have put it on hold for so long due to all of our hectic issues, and this is going to broaden my skills (hopefully?).

There's a lot going on lately. We still haven't had our OT evaluation yet but we did have our first PT session. Callie took it much better than I anticipated and there were no breath holding incidents. Tummy time was excellent for the first practice, but after the therapist rolled her over for a break, apparently Callie thought she was done. Much crying ensued for the next three repetitions.

She got her five month shots last week, and she did well. I guess it's one advantage to decreased sensation in her legs, poor thing doesn't have to suffer through the pain of shots. Her leg swelled up and so did the left side of her lady parts. Even after the swelling in the leg went down, the other piece still looked bad. We watched it over the weekend and thought it was getting better but Tuesday it appeared exactly the same as it did over the weekend. After a trip to our pediatrician, we were sent to Children's Hospital ER because he suspected Callista had a hernia. After a 6 hour ER trip, an ultrasound, and three different doctors saying the exact same thing (waste of time...) she does in fact have a hernia in her groin. It was just fluid and not an emergency surgery thing, so now we have an appointment with a surgeon to schedule an outpatient surgery for the hernia. This will be surgery #5 for our little girl, hopefully the last if we're lucky! Surprisingly, it hasn't been affecting her at all, she's all smiles and laughs lately. I'm getting excited for her first "words" now, because she has started mouthing things you say to her. She still hasn't gotten the hang of actually making any sounds with it though! She's got her diva attitude moments, but she's an excellent baby!

Her urodynamics test is coming up. Hopefully it shows good things. We are cathing twice a day currently, I'd hate to have to increase it. I don't want to teach other people how to do it for one thing. And for another, the poor kid already has such an abnormal amount of crap done to her, I really don't want to add anything else. I am hopeful because she does void on her own a lot. Just pray for sticking to twice a day!

In other news, we got a bill for $400,000 from Children's, because the insurance has had it stuck in "high claims review" for too long. Yeah, that one isn't getting paid. We're still waiting on the results of our medicaid waiver as well. We're definitely praying that goes through so Callie can have a nurse come to the house to care for her while we are working or gone. Especially if we have to increase cathing.