We had myelo clinic last week and all areas had good reports. Urology is happy with her vesicostomy. PT and OT all said she made improvements and commended our home PT and OT for doing great jobs. We didn't really get to talk to neuro but they checked her shunt and said all was well. Physical medicine was a bit concerned about her left leg, but ortho came to look at it and had no concerns. Her hips have always been under great scrutiny and she's had I don't know how many x-rays of them for everyone to decide her sockets are shallow. Her left leg always appears shorter than the other, mostly due to her muscles being so tight up the back of her leg. Once you do her stretches for PT, both legs are the same length. It just takes some effort and it's something we work on daily. We met another friend and her mommy, so happy to continue getting to know fellow SB mommies that are near to me!
In other happy news, Callista is working on her abs. Literally. She has been doing crunches lately, wanting to sit up so badly. We are happy to see such progress, but at the same time, I think it is making her reflux much worse. She had an upper GI study yesterday and they said everything is digesting fine but her reflux is so bad that once her stomach fills up, it basically shoots up her esophagus to her throat. We are doing slower feeds, and longer continuous feeds overnight to try and cut down on the amount she throws up. Weighing in at almost 16 lbs now, I don't think it has been hurting her growth!
My little brother and his new wife had their wedding reception last night and Callista got as much attention as the new married couple! We don't take her out much so when we do, everyone oohs and ahhs over her. She enjoyed the new faces and being held a lot. I do not know how, but she slept through the DJ, announcements, and constant stream of people. Then we get home and she doesn't sleep in silence. Perhaps the trick is to play really loud music? ;) All I can say is I have a REALLY good baby, and am so thankful for that!
No comments:
Post a Comment