Clinic Day

Clinic this morning went much better than expected. There was so much positive attitude I was in shock! Usually we are stuck listening to complete strangers tell us what our daughter can't and will not do. This time, it was praise after praise. I am always terrified of MRIs and ultrasounds. You just never know what is going to show up.

Today's MRI showed that her ventricles are even smaller than the last time they scanned. You could visibly see more brain matter in today's imaging than in the ones from July. We love our nurse practitioner from Neurology so much as she took the time to sit down with us and go through image by image and tell us what they meant.The renal scan (kidneys and bladder) showed no changes from the scan they did in September. So her vesicostomy is working and no more damage is being done to her kidneys. The urology doctor said her vesicostomy looked great as well.

The physical therapist was impressed with her new found head control, tummy time skills, and core strength. She told us that on her notes in September, she was very limp and had no head control, so this was a huge step forward. She gave us suggestions on how to work on sitting up, so we will be starting those ASAP! (And grandpa will be building her a therapy bench lol). We go back again in three months, and hopefully she will have enough upper body strength to qualify to get her first set of leg braces!

My proudest moment of all today was getting to share the fetal surgery experience and benefits with neuro (the awesome one). Callista performed well, wiggling her tiny toes and responding to touch on her feet. I hope that they start sharing the option with the soon-to-be SB moms they consult with. We were their first fetal surgery baby and we're FINALLY proving it is worth it.

On a side note: I bought some things for Callista's first birthday party today. WHAT?! Yes, that made it real for me. It's coming in just a few weeks and I have no idea how our very first year with our daughter has flown by so quickly. I am so excited to share the big day with family and friends.