Well, THAT was Fun....

We did our first PICC dressing change tonight. Here's how it's supposed to go: wash hands, undress baby, put masks on any adult within range as well as baby. Create sterile field, remove bandage, wash area with antiseptic swabs, replace bandage.

How it really goes: was hands, undress baby, put masks on mommy and daddy, mommy holds mask over screaming baby as best as she can while daddy retrains baby's swinging arm. Baby screams and screams and holds breath due to restraining. Try to locate the damn supplies you KNOW you brought in while trying to keep a sterile field, maintain holding mask over intermittent breath holding baby Daddy struggles to put new bandage on flailing arm. Finally get to take off masks and comfort baby. Endure glares from said baby for the rest of the evening.

Needless to say, I hope it's out before the next change is scheduled to happen! Now I am trying to cuddle on the couch and make up with my littlest love, who is clearly going to hold this against us for a bit. Her shunt revision is scheduled bright and early Friday morning. It should be a short surgery and a pretty short recovery time if all goes well. Please keep Miss Callie in your thoughts. And a big THANK YOU to the folks who have ordered from our Amazon link! We appreciate the help :)

Three Letters: UTI

What a bummer! Callista is admitted to the hospital with a UTI. She has been vomiting since her MRI April 2nd, but we attributed some of that to her adverse reaction to anesthesia. Then we changed her formula to something for older children around the same time. So the symptoms could have been due to many things. But apparently it was a UTI. I am quite a bit disappointed it got this far considering I brought it up to urology at our clinic the first week of April. I told them I had concerns about it and it was brushed off. When will they learn that moms know best?

As for now, we will be in the hospital at least until tomorrow, but maybe more depending on what kind of bacteria is causing her infection. This also sets back scheduling the shunt revision. I haven't heard from the team how long we have to wait now, but it's too dangerous to do a surgery when there is infection in the body. The last thing we need is a shunt infection to go along with it. We have several neurosurgeons on the same page now regarding how to proceed with the syrinx. A large pocket of fluid is in the center of her brian and the catheter is barely in the pocket. Hopefully once the shunt is fully functioning again, it will clear up all the extra fluid making its way down her spine.

I shared on Callie's facebook page as well, but wanted to post here too... We have joined the Amazon Affiliate program. To the right, there is a link to amazon. If you ever shop there, you can go through Callie's link and a percentage of your purchase will go into her medical account. It costs you nothing! Please consider using the link in your shopping endeavors :) We use these funds for equipment that insurance won't cover, as well as saving for braces, etc. since only one set gets covered in a certain time period.