Freedom

What an exhausting week! Callista finally got her scope of her esophagus. It turns out her g-tube was too long and was blocking her pylorus, the opening to her intestines. The lining of the esophagus and stomach were raw and she had a tear in the bottom of her esophagus. Who would have guessed that after all this time it would be so easily fixed? They replaced her Mic-Key button with one that is a half centimeter shorter and upped her dose of Prilosec. Now we just have to give it time to heal. While we were there, we also got another swallow study and the speech therapist said it was okay to begin sampling pureed foods (yay!). It's still a no go for liquids, but at least we made some progress.

Again, I was NOT impressed by the PICU at all... What puts the icing on the cake is that somehow PICU shared with urology that Callie was uroseptic, meaning her urinary tract infection spread throughout her whole body (can we say deadly if not treated ASAP??!!). When the urology doctor came in the room, needless to say he was pleasantly surprised that he was looking at a happy, healthy baby.

We have to go back at the end of August for the hernia repair as well as a renal scan to make sure her kidneys aren't scarring from the reflux and pressure. It's just a precaution and I'm pretty sure it won't show anything since none of her infections have ever made it to the kidneys. Keep Callie in your thoughts as we hopefully get our last few issues out of the way!

I'd like to ask you to please think of our little friend Aiden, who also has spina bifida, as well. He will be going through his second decompression surgery Friday and would appreciate all your positive vibes his way! What a strong and handsome little boy. 

After all that, we ordered pizza. I'm eating and going to bed because this mama is exhausting!!